A recent report released by the Alzheimer’s Association shows that stigma is a major concern for people living with early stage Alzheimer’s disease.
The report, “Voices of Alzheimer’s Disease: Summary Report on the Nationwide Town Hall Meetings for People with Early Stage Dementia,” was released at the 16th Annual Dementia Care Conference. A total of 301 people with early stage Alzheimer’s participated in the qualitative study that illuminates the challenges and experiences of those living with the disease.
Among participants’ top concerns was the stigma of Alzheimer’s disease, often brought on by misconceptions about the disease. Study participants reported that upon revealing having the disease, others often assume death is imminent.
Participants also reported a reluctance to discuss the disease, fearing social isolation.
Other concerns cited by study participants:
• Dissatisfying interactions with the medical community
• A desire to stay active, even when presented with challenges
• Financial and life-planning
• Accessing community services
The entire report can be read here.
According to the Alzheimer’s Association, an estimated 5.2 million people in the United States are afflicted with Alzheimer’s, with 2.6 million in the early stages of the disease.
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